This girl is eleven years old today, and she is still the center of our universe.  Every parent wants what is best for their child, and having a special needs child determines every aspect of both my life and her father’s life.  She is the reason we currently live in Kentucky (eligible for Medicaid waiver based on disability), and she is the reason we bought a handicap accessible home.  She determines the vehicle we drive when she is with us.  She determines the jobs we have (or don’t have in my case since I decided staying home was the best choice), and dictates the insurance coverage we have.  She affects when and how we travel.  She influences even small decisions in our everyday life, but we wouldn’t trade this life for anything!  She has brought so much joy to those that know her over the past eleven years! Even though we are celebrating quarantine style, we are making this day all about Sayla!